I normally don't post things like this but today I'm making an exception. This next weekend we are participating in the Walk for Autism Speaks at the Seattle Center. Here is our story and why we walk. If you would like to donate to our team there is a link to the life with butters team page at the bottom.
Did you know that every 15 minutes another child is diagnosed with autism? This has occurred in my family.
When Alvin was diagnosed we were floored. How could he be autistic when he talked, was social in his own way and generally a happy kid. That didn't fit autism sterotype that we knew of so we didn't understand. Soon after the start of the diagnosis we found out exactly what it was. Alvin has Asperger's Syndrome a form of autsim. His lack of coordination- related to Asperger's Syndrome. His exceptional skill with numbers- another trait of Asperger's Syndrome. And the list continued to grow. Now we better understand our son and others like him. We fight daily to help him reach his full potential in all aspects of his life.
I am walking in the fight against autism at Walk Now for Autism Speaks, joining tens of thousands of other people united by a single cause and dedicated to raising money to find a cure and build awareness for autism. The money raised at Walk Now for Autism supports Autism Speaks mission to finding the causes, effective treatments and a cure for autism through funding essential biomedical research. One in every 110 children and 1 in 70 boys are diagnosed with autism. Autism Speaks directs 75¢ out of every dollar raised to autism research, awareness and outreach.
Please consider helping kids like Alvin by joining or donating to our team! LifewithButters walks for Autism Speaks!
Showing posts with label Autism Speaks. Show all posts
Showing posts with label Autism Speaks. Show all posts
Sunday, September 11, 2011
Sunday, June 19, 2011
IEP progress report and Show Week
This past week was Butter's last week of school and show week at the gym. Plus we also had Austism Speaks night with the Seattle Mariner's so to say the least it was a busy week.
I've been nervous for a few weeks about the IEP progress report. I guess I saw so many improvements that I was just hoping that he was doing the same things at school.When I first read the progress report I was suprised he wasn't doing better. Most all of the remarks he got were an emerging skill except for language which was more of a mastery. After I read and re-read the comments I was happy with it. He is making progress which is the key. If he had made no progress in the areas it would have been down right depressing. Once I had time to sit down and think about it his teachers were exactly right. So overall a very promising report and plenty to work on this summer.
Tuesday night we had the Autism Speaks night at Safeco Field with the Mariner's. To say we all had a good time is an understatement! Butters was in love! The staff was so nice and many times came up to give the kids baseball cards out of no where. The especially loved the play area. Staffed at the entrance and inside there were plenty of extra eyes just incase he decided to bolt. Also they had a strict policy of no alcohol inside the area at all which I loved! Butters was in love with the area though and we came back a few times before the game started so he could get some energy out.
Wednesday night was the big Show Week at the Gym. To say the least I was really nervous about this but it turns out it went much better than I had imagined. Below are his routines on the bar and balance beam. I tried to get his tumbling routine on the floor but after people started clapping half way through he got freaked out and bolted away so I had to run after and retrieve him to finish the routine.
So the next topic I'm planning on tackling is helicopter parenting. Does having a diagnosis make you more aware and protective of what they do and when or have you adapted to it just not phasing you anymore?
I've been nervous for a few weeks about the IEP progress report. I guess I saw so many improvements that I was just hoping that he was doing the same things at school.When I first read the progress report I was suprised he wasn't doing better. Most all of the remarks he got were an emerging skill except for language which was more of a mastery. After I read and re-read the comments I was happy with it. He is making progress which is the key. If he had made no progress in the areas it would have been down right depressing. Once I had time to sit down and think about it his teachers were exactly right. So overall a very promising report and plenty to work on this summer.
Tuesday night we had the Autism Speaks night at Safeco Field with the Mariner's. To say we all had a good time is an understatement! Butters was in love! The staff was so nice and many times came up to give the kids baseball cards out of no where. The especially loved the play area. Staffed at the entrance and inside there were plenty of extra eyes just incase he decided to bolt. Also they had a strict policy of no alcohol inside the area at all which I loved! Butters was in love with the area though and we came back a few times before the game started so he could get some energy out.
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| Yum, Garlic fries! |
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| Loving the play area inside Safeco Field |
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| Chilling out in our seats before the game |
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| Fist bump with the Moose! I was so shocked that he even wanted to get close to him!!! |
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| Of course we had to have a hotdog at the game. |
Wednesday night was the big Show Week at the Gym. To say the least I was really nervous about this but it turns out it went much better than I had imagined. Below are his routines on the bar and balance beam. I tried to get his tumbling routine on the floor but after people started clapping half way through he got freaked out and bolted away so I had to run after and retrieve him to finish the routine.
Beam routine!!
Bar routine!
So the next topic I'm planning on tackling is helicopter parenting. Does having a diagnosis make you more aware and protective of what they do and when or have you adapted to it just not phasing you anymore?
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